Being a #freefrom Parent: #1 Katy

Monday, 9 January 2017



As you know, Mikey has multiple food allergies and I write quite a bit about how we cope and deal with them as a free from family.

I thought that it would be great to share other parents' stories of their children and what it is like Being a #freefrom Parent.



Today, Katy shares her story......




My daughter Daisy is 10 months old now and has been diagnosed with CMPA (cows milk protein allergy) for 8 months already. In this time we have learned a lot about how to feed and nourish a baby with CMPA, also, we have learned a lot about how the NHS work when it comes to children with allergies. Today I want to talk to you about how we managed to get our daughter diagnosed with CMPA.


When Daisy was 11 days old, on the 1st of April, she projectile vomited for the first time. I was covered, as was she. She laid there, shaking in shock from the sheer force and speed of the vomiting. At the time I joked with my husband about how she was 11 days old and already playing pranks on us for April Fools Day. I was sure that she had vomited an unusual amount for such a small baby but my midwife was happy that she was still gaining weight and doing well so I didn’t worry at the time. 


Over the next 2-3 weeks Daisy began to projectile vomit regularly. First it started at night. I would place her in her cot and in the following few minutes she would proceed to vomit with such force that my tiny baby (born at 5lb 13oz) would cover the walls, the floor, herself, her cot and sometimes even our double bed too! We attended the doctors several times and we were prescribed infant gaviscon, which made no difference at all. 


It was at 5-6 weeks old that Daisy began to projectile vomit after every single bottle. She started to lose weight and one evening she vomited three feeds in a row. I rang the NHS 111 service to be told that a Doctor would call back. When they did they advised me that it ‘was not possible for a baby to have been crying for 5 solid hours at such a young age’. I was being dismissed. Just like that. Daisy managed to keep a few ounces down and then she slept. At 5am the vomiting began again. Projectile vomiting as before. I rang the NHS 111 service again and this time I was asked more in-depth questions by the Doctor who rang. He advised me to attend A&E with Daisy as she had a sunken fontanelle and was at risk of becoming dangerously ill.


We attended A&E at 7am and by 8am Daisy was admitted to the children’s A&E. She had severe dehydration. Through the course of the day she had her urine tested, and a blood test carried out. We then spoke with a consultant and it was determined that Daisy was suffering from CMPA. We were advised to switch from breastfeeding straight to prescription formula, as Daisy was already in a bad way, so we did so. 


For a few weeks the formula we was prescribed, Nutramigen, was working perfectly for Daisy. The vomiting stopped, her weight gain increased, and we were thrilled. Then Daisy started to get the classic symptoms of reflux/CMPA once again. She was constantly ‘full of cold’. She seemed to be sneezing, coughing and wheezing all the time. Then the vomiting started once again. We rang the consultant that we had been referred to and he advised that Nutramigen still has some of the cows milk protein, just more broken down, as it is cheaper than the formula without the protein and a lot of babies can tolerate it. So the cycle began again. Daisy was switched to a more expensive milk, Neocate, and we had to ride it out for several weeks while her symptoms subsided. This time Daisy was also prescribed Omeprazole, to help with the symptoms of GORD. 


Finally we had a prescription formula that worked! Daisy is now 10 months old, she weighs 21lb and is doing fantastic. She no longer has all of the cold like symptoms of CMPA and as long as she isn’t accidentally given anything containing dairy she is rarely sick. Daisy has gone from being underneath the centiles to the 75th centile and has stayed there for several months now. 


For us we have found that persistence is key when it comes to getting a diagnosis. Particularly if you are a first time parent. It is not unusual for parents to worry, sometimes unnecessarily, about their children. This means that naturally Doctors are cautious about just making diagnosis that may lead to long term medication or expense for the NHS. We had to visit our Doctor several times, and persist with ringing the Consultant too later down the line. Daisy was given an ultrasound, to rule out pyloric stenosis, and finally then we were able to get her GORD officially diagnosed.


If you are a parent who is worried that their child may have CMPA then I would advise that you persevere. It can be frustrating when you are initially just given a prescription for Gaviscon, however, try this first. It may be what helps your little one as all babies are different. Not all babies with vomiting and CMPA like symptoms actually have CMPA. Some are suffering only from reflux, which in itself can be pretty hard to cope with! Remember that you are the parent and you know what is right for your own child. If your child is unwell and you are worried then persist with visiting your GP. I know I’d much rather be labelled as a worrier or a hypochondriac than have my child suffering. 






Katy is a mother to one daughter, Daisy and wife to Thomas. She is a full-time blogger who specialises in making money online from home. Katy's website is full of ways that you can make and save money both online and offline. 


You can also find recipes that are suitable for weaning a CMPA baby. To find out more, head to Katy's website http://katykicker.com She can also be found on Twitter , Instagram and Facebook



If you would like to take part in the new Being a #freefrom Parent, please get in touch!











5 comments:

  1. My niece suffered with vomiting a lot when she was a baby, she was also prescribed a special type of milk. It is so worrying for parents when this happens, especially when you feel as if you are being palmed off with no help. I am glad that Katy finally found something that worked for her little one.
    #KCACOLS

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  2. I think that this is such a great series to have my lovely. It's always interesting to find out how other parents deal with different allergies. I'm glad that Katy finally found out a way with her little one. #KCACOLS

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  3. goodness this sounds horrendous. and I find it really unnerving that new parents need to be so persistent. yes we are new parents and overly worried but sometimes things just aren't right. and for bubba to be projectile vomiting so much, that isn't right. we had projectile vomiting over our first xmas and I foud it really scary. the force of which the milk came out. so at 11 days, yeah id have been worried.
    Thanks so much for linking up at #KCACOLS. Hope you come back again next Sunday!

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  4. Gosh that sounds so scary! Thank goodness the second doctor took your concerns more seriously! Oh of my friends little boys has similar allergies and it's very scary to witness, especially when their so small! It's excellent that you've managed to find a substitute which works for your little girl #KCACOLS

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  5. Persistence is the key to a lot of things in the NHS. Glad they got help and the right formula. #kcacols

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