As you know, Mikey has multiple food allergies and I write quite a bit about how we cope and deal with them as a free from family.
I thought that it would be great to share other parents' stories of their children and what it is like Being a #freefrom Parent.
Today, Sam shares her story......
We have been here before; with our eldest son. However, this time it is slightly different...
Our eldest son was milk intolerant (not lactose intolerant as that’s different), and cutting out milk from his diet solved his symptoms. Little K on the other hand has been milk free since a baby but he still had more symptoms that just didn't seem to improve.
Where it all started
When little K was about a week old, he had been showing the same signs as Big K. So we took him straight to the doctors and he was prescribed gaviscon and nutramigen (we didn't give the doctors a chance to say no.)
We continued with this until he was 5 months old. Even though his symptoms improved his skin would still flare up. At 5 months we also started to wean him onto solids (we did baby led) Second time around weaning was easy as we knew most items that have milk in them.
Fast forward to 18 months and I finally decided something had to be done because his skin was not improving. I had started to notice that his skin would flare up when holding bread or pasta, so I did a 2 weeks test of no gluten or milk. Within this 2 weeks his skin improved, sleep improved and he seemed a lot happier in himself. After 2 weeks we put him back onto gluten and all symptoms came back :-(
Back to the Doctors
Off to the doctors we went and asked to be referred. Luckily as I had pictures and details of what had been done (the 2 week test) the doctor referred us without question for once.
His referral appointment was at the start of January. The doctor asked various questions and we answered them all and also shown him pictures and mentioned about the 2 week test we had done previously. The doctor was pretty convinced I was indeed correct. The doctor had advised us that he thought it was a gluten allergy because of how Little K's skin reacts so quickly.
However, having since done some research there doesn't seem to be such a thing as a gluten allergy! There is only gluten intolerance, or a wheat allergy (and of course coeliac). I think we will have to wait until his skin prick test and ask for more information regarding exactly what he has.
He advised us to keep Little K off gluten and milk until 2 weeks before his skin prick test (this is the end of March).
Being gluten and milk free is a lot more challenging, and we have been caught out a few times. If he was just gluten free then it would make things a bit simpler. Hopefully we can start the milk ladder if his skin prick test reveals he is no longer milk intolerant. It's a daily lesson and we learn new things every day.
Our biggest tips
You know your child. If you think something is wrong the push for answers. Keep a diary with food, symptoms etc. Remember not all symptoms can happen straight away (Big K's symptoms appeared 24-48 hours after he had eaten something, while Little K gets symptoms within an hour)
Always have your own snacks with you. We even take meals with us sometimes if we don't think where we are going will be suitable.
If going on a family holiday, then write down a sentence explaining the situation in the local language or get an allergy translation card. Even such what milk, gluten are if you are off shopping so you can check ingredients. It all helps!
Sam is a mum of two and writes a family, travel and outdoor blog called Travelling with Our Kids and can be found on Twitter, Pinterest and Instagram.
If you would like to share your story on Being a #freefrom Parent, please get in touch!