Cow's Milk Desensitisation

Friday, 15 September 2017

 So this morning I woke up and realised that I haven't blogged for over two weeks, which is really unlike me! The past few weeks have flown by so fast, so I thought I'd let you know the most important thing that has happened to us lately.



Hospital Appointment

As you are all aware, Mikey is severely allergic to eggs and nuts as well as having an allergy to milk. As he has multiple allergies, it restricts him and his diet much more than if he had just one allergy.


However, all that MIGHT change in the near future. We recently met with Mikey's allergy specialist who told us that Mikey would be a perfect candidate for oral tolerance induction for cow's milk protein, which is amazing and we still can't believe it!


Since he was about five or six, Mikey has been eating cooked milk in his diet. It began with a crumb of cake, which was then increased slowly over the coming weeks, months and years later, he can easily tolerate a few malted milk biscuits. He tells us and his friends that he's allowed biscuits every day as they're his medicine!

Like the cooked milk, desensitisation is something we were allowed to go away and discuss, but as he is much older, Mikey was allowed the final decision. We were told that there isn't a requirement for him to do it, but when we were discussing it in the car and at home, although it's a scary process, he realised that it would be a great opportunity for him.

As a parent, the whole process is both daunting and mind blowing. My little boy who has been avoiding cow's milk for over 12 years could soon be drinking it!


We know that it will be a long process. It'll start with a very diluted amount of skimmed milk, which Mikey will only have a drop of to begin with. This will also be done in hospital just in case. After that, it'll be done at home, where we'll increase the drop amount slowly, day by day.


Although the programme in theory should take three months, we were told that no-one manages that straight away. Patients usually have to take a couple of steps back and then carry on. None of this bothers us or Mikey though. Even if it takes him a year to finish, it'll definitely be worth it!

By even attempting this, I know that Mikey has matured so much. Years ago, he used to back into the corner whenever any new food was offered, even when it was safe. Now, he can sit and discuss the options given to him. I'm so proud!


We're not sure when the desensitisation programme will begin as we're waiting for an appointment letter, but Mikey is hoping it is soon!




Keep Calm and Carry On Linking Sunday



JakiJellz

7 comments:

  1. Ah this sounds fab! Like you say, however long it takes it will be so worth it in the long run! Thanks so much for sharing with #Blogstravaganza xx

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    1. It really will be! It's such an amazing opportunity for him! :) xx

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  2. This sounds like really positive steps for him and great that you're now able to discuss all of the options with him. Hope the appt happens soon! Carrie x #blogstravaganza

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    1. He really is so good with it all, so it's great to discuss it properly with him :) xx

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  3. Definitely worth trying. Mikey sounds like a very mature lad to be taking the decision to do it. #KCACOLS

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    1. He really is, bless him. It's so great to see him taking responsibility for his allergies- although I'm nowhere near ready to let him take the reins yet!

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  4. Bless him! My son used to feel ill every time he ate cheese so I stopped him eating dairy for about 9 months I think (it was about 20 years ago now). We reintroduced it a little by little and he's fine on it now. I hope it goes well for Mikey, he sounds smashing x #TriumphantTales

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